Thursday, December 25, 2025

My Heart Aches: Navigating the Pain of Losing My Second Mom

 

Holidays can bring both happiness and deep sadness. They remind us of the joy of being with loved ones, but also make us feel the pain of those who are gone. Some people have time to prepare for holidays without someone special, while others face that loss right in the middle of the season. My heart aches for my ex-husband, his family, and my children as we grieve the loss of my "ex-mother-in-law", who passed away just days before Christmas.

Carolyn was a truly remarkable woman. One of my favorite memories is a long, 14-hour drive we took together, just the two of us. As we drove, we talked about life, family, love, and what matters most. During that quiet time, I promised her I would never stop loving her son, Scott, and that I would always be there for him, no matter what happened. She told me how much that meant to her, and I felt the importance of that moment. I meant that promise when Scott and I said our wedding vows 40 years ago. I meant it when our marriage ended. And I still mean it today, because love that deep does not just disappear.

Our family has changed, but the love has stayed strong. Scott and I have stayed close friends, even after being divorced for 13 years. I remarried, and from the start, my husband understood that my children and their father would always be important to me. That understanding made my love for Lance even stronger. He knew we came as a package. What we have now is a family that may be different, but it is built on respect, compassion, and commitment. It works for us, and in its own way, it is a win for everyone.

Carolyn may not have fully understood our family situation, but she accepted it, and that meant a lot. She never held my new marriage against me. Instead, she welcomed my husband, Lance, into the family, which he still finds hard to believe. His own family did not accept me, and I am estranged from my own family, so Lance and I were left without the mothers we needed. But my ex-mother-in-law showed us kindness instead of judgment. She kept loving me as a daughter, reminding me that family is not just about blood, but about the people who choose to stay.

Carolyn really was a remarkable woman, and loving her for more than forty years has been one of the greatest gifts of my life. She often showed me what grace looks like in everyday life, even without saying a word. She made people feel accepted, no matter their flaws or past, and she did it with a quiet strength that stayed with me. Our relationship was not perfect—no real relationship is. But even when we disagreed, she never stopped loving me, and that meant more than she knew.

She supported Scott and me in a way I had never known before: steady, respectful, and selfless. I know she had her own opinions about the changes I made in her family, but she always chose love over control. She accepted those changes without resistance or judgment. When she gave advice, it was because we asked for it, and when she stayed quiet, it was thoughtful and kind. That rare support shaped me as a mother. Because of Carolyn, I learned to stand beside my children, trust them, and love them without conditions.

I am so grateful for my wonderful adult children, and I know Carolyn was very proud to be their grandmother. Maybe she stayed close to me after Scott, and I divorced because she loved them deeply. Maybe she remembered the promise I made to always love her son and knew I meant it. Or maybe it was just who she was—a woman with a heart big enough for complexity, change, and forgiveness. She never explained her reasons, never wanted recognition, and never made me feel like I had to earn my place. Instead, she gave me love, respect, and a sense of belonging. I will always be grateful that she allowed me to remain part of the family, and I will carry her example with me for the rest of my life.

Her death is hard for everyone, but few people really know how hard it is for me. I feel like an orphan. My pain and grief for her are as real and deep as any daughter’s grief for her mother. Our relationship never fit a simple title. Ex-mother-in-law sounds distant and cold, which is nothing like what she was to me. Legally, I can’t call her Mom anymore, but in my heart, she has always been my mom. She was, and always will be, my mom.

Carolyn was a woman of strength—quiet strength. The kind that didn’t demand attention, but held everything together. She was a true matriarch, the backbone of the family. She worked hard her entire life and loved her family with that same fierce devotion. She was someone my children could look up to, but just as importantly, she was someone I looked up to—even though, by height alone, I stood above her.

She loved our children unconditionally and with pride. She was always there for them, always involved. She celebrated their successes as if they were her own. I know how proud she was when my daughter graduated from Purdue and when she made Carolyn a great-grandmother. I am so grateful that my children grew into responsible, loving, and giving adults, and I know that didn’t happen by accident. Their grandmother helped shape them into the adults they are today, people everyone is proud of.

My heart aches with the loss of my mom, who was not my flesh and blood, but was my mother in every way that mattered. Losing a mother is unlike any other loss. It goes deeper than words and touches places we didn’t know existed. Carolyn made me feel safe and understood, both in my proud moments and my flaws. With her gone, the world feels less steady, as if something important is missing. No matter how old we are, part of us will always long for our mother’s presence, her voice, and her reassurance. I still long for Carolyn’s.

Grief for a mother is not a straight path. It comes in waves, sometimes gentle and sometimes overwhelming. Ordinary moments can suddenly feel heavy: a holiday, a memory, or a simple question I wish I could ask her. Even when a relationship is complicated, the loss brings a special kind of pain. I grieve not only who she was, but also what she stood for: home, history, belonging, and unconditional love.

Even with this loss, her lasting influence remains. Her lessons, values, and love live on through us. We carry her in the way we love, care for, and support others. A mother may leave this world, but her presence never really goes away. She becomes part of who we are, quietly guiding and shaping us, even when she is gone.

Carolyn was that woman in my life.

My heart will always ache.

I love you, "Mom."

Wednesday, December 10, 2025

Bleeding Wallets: The High Cost of Blood Cancer Treatment Compared to Other Cancers

The financial burden of cancer treatment is a significant concern for patients and their families; among all the various types of cancer, blood cancers—particularly multiple myeloma and leukemia—surface as some of the most expensive to treat. The costs of treating blood cancers go beyond the initial diagnosis and treatment phases, resulting in excessive healthcare expenditures that many families find hard to manage.

The average cost of blood cancer treatment exceeds $150,000 in the initial year, with acute leukemia patients incurring the highest expenses across all age groups. On average, these patients can accumulate costs nearing $450,000 in their first year of treatment. Patients diagnosed with multiple myeloma also exceed the average cost, totaling just over $200,000 in the first year.

Comparing Costs Across Cancer Types

When evaluating the costs of treating different types of cancer, blood cancers, particularly multiple myeloma, consistently emerge as the most expensive. This is mainly due to their unique treatment requirements, which often involve complex and ongoing therapies. However, lung and thoracic cancers have the highest annual costs. Lung/thoracic cancer has high total yearly costs, often with shorter or less complicated treatment timelines. At the same time, multiple myeloma is the most expensive cancer to treat annually per patient. It is important to note that the nature of blood cancer treatments, including advanced therapy protocols, significantly contributes to higher overall treatment costs.

High Initial Costs

Blood cancer treatments are generally more expensive when compared to other cancer types. For instance, patients newly diagnosed with multiple myeloma can incur costs exceeding $200,000 within the first year of treatment. This expense is primarily because the treatment regimens are complex and often require a combination of therapies. There is a need for specialized care and frequent monitoring during the initial treatment phase. The costs of medications, such as maintenance lenalidomide, are high. Moreover, the high initial costs are just the beginning. The financial implications often extend into subsequent years, amplifying the burden on patients and their families.

“Unlike [other hematologic cancers] such as large B-cell lymphoma or Hodgkin lymphoma, where you give 6 months of treatment and you’re done for most patients, in myeloma, treatment is pretty much lifelong, continuous therapy, for 7 or 8 years or more, which is the median survival of the disease,” said Dr. Rajkumar. “And we don’t use these drugs alone; we use them in combination, which then increases the cost even more…. Quadruplets are up-and-coming options now, very similar to R-CHOP [rituximab, cyclophosphamide, doxorubicin hydrochloride, vincristine, and prednisone] for the cure [of non-Hodgkin lymphoma]. You are talking about a four-drug combination of monoclonal antibodies costing between $350,000 and $600,000 for 1 year of treatment.” (Cavallo, How to Treat Patients With Multiple Myeloma Cost-Effectively Without Compromising Outcome)

Ongoing Treatment and Relapses

One of the staggering realities of myeloma treatment is that nearly all patients will experience relapses or develop cancers that become refractory to existing therapies. This inevitability leads to some critical factors. Multiple myeloma patients often require indefinite, long-term maintenance therapy, which can include a combination of doublet or triplet therapies. This ongoing treatment approach is necessary to manage the disease. Still, it amplifies financial toxicity, as patients must bear additional costs for extended periods.

Patients diagnosed with acute leukemia often face significant out-of-pocket expenses, leading to immediate financial burdens. In contrast, those diagnosed with multiple myeloma tend to accumulate significantly higher total out-of-pocket costs over a three-year period. Patients' higher costs can often be traced back to numerous relapses and a range of treatment plans.

The Emotional and Financial Toll

Beyond the straightforward financial analysis, the strain of high medical costs can have profound emotional and psychological implications for patients and their families. Prolonged treatments can lead to high levels of stress and anxiety related to financial issues and a decline in quality of life due to ongoing health problems and the side effects of treatment. Financial limitations, not just medical factors, may significantly influence care decisions.


These factors underline the importance of addressing the clinical aspects of cancer care and the financial and psychological challenges arising from the high treatment costs. The costs associated with blood cancer treatment, particularly for diseases like multiple myeloma and leukemia, reflect a complex landscape where financial toxicity is an almost unavoidable reality. Patients often bear the brunt of high initial expenses and ongoing treatment costs, which accumulate over the years, leading to increased financial strain and emotional distress. As healthcare continues to evolve, it is imperative for stakeholders to address these spiraling costs and to ensure that financial barriers do not impede access to crucial, life-saving therapies. Understanding the financial impact of blood cancers—especially compared to other cancers—highlights an urgent need for systemic changes to improve patient outcomes and alleviate economic burdens in the future.

References

Cavallo, J. (2020, August 25). How to treat patients with multiple myeloma cost-effectively without compromising outcome. The ASCO Post.

Dieguez, G., Ferro, C., & Rotter, D. (2018, October). The cost burden of blood cancer care. Leukemia and Lymphoma Society.

Team, R. (2024, February 1). The true cost of multiple myeloma. Resolve Wordmark.